Information for people who request access to data of the dataset Dissecting CAF-subtypes in pancreatic Cancer (https://doi.org/10.5878/0ehq-1434)

Background

The data of the dataset Dissecting CAF-subtypes in pancreatic Cancer (https://doi.org/10.5878/0ehq-1434) contain sensitive information about patients and are protected by the General Data Protection Regulation [1] and by the Public Access to Information and Secrecy Act (SFS 2009:400) [2]. For this reason, access to this data is restricted and may be given upon request, if the legal and ethical requirements for it are fulfilled.

Procedure

The department that is responsible for this data is the Department of Diagnostics and Intervention at Ume University. As Ume University is an authority, a request to access this data is a request to access public documents with restricted access. If you submit a request for access to data of this dataset, it will be received by staff members at Ume University Library who will document if and forward it to the Department of Diagnostics and Intervention. 

To facilitate processing your request, please check the following points.

1. Please provide complete details of your affiliation and an institutional email address.
2. Please provide a brief description of the research, for which you would like to use the requested data. Please specify also what data files you would like to access and why.
3. If you have more than one affiliation, please provide your contact details at the organization that will be responsible for this research and for the requested data.
4. If you are a student, a doctoral student or researcher on a fellowship, please show that your request has support from a Principal Investigator at your research organization. 
5. If potential conflicts of interest exist, please declare that in your request.

The Department of Diagnostics and Intervention makes an individual confidentiality assessment of each request. If you would like to learn more what the department must to consider in a confidentiality assessment, please read the page about Secrecy for research data at the Research Web of Ume University [3].

The Department of Diagnostics and Intervention has approved earlier requests for access to the results files of the gene expression study. There is, for instance, an anonymized dataset that contains the gene expression levels and basic clinical variables. If you would like to access this specific part of the dataset, the department might be able to process your request based on those earlier decisions.

References

[1] European Union. (2016). Regulation 2016/679. https://eur-lex.europa.eu/eli/reg/2016/679/oj/eng
[2] Government Offices of Sweden. (2009). Public access to information and secrecy. https://www.government.se/information-material/2009/09/public-access-to-information-and-secrecy-act/
[3] Ume University. (2025). Secrecy for research data. https://www.umu.se/en/researcher/plan-and-implement/manage-research-data/research-data-an-overview/secrecy-for-research-data/
