2026-10-14 https://api.researchdata.se/oai-pmh

oai:researchdata.se:2021-68-1/1 2026-03-27 subject:ssif:3 subject:ssif:30207 subject:ssif:30221 subject:ssif:30307 subject:ssif:30311 subject:ssif:50910 subject:ssif:302 subject:ssif:303 subject:ssif:509 subject:ssif:5 principal:slug:karolinska-institutet

info:eu-repo/semantics/other http://purl.org/dc/dcmitype/Dataset https://doi.org/10.5878/txww-hg72 Functional development in children and youth with cerebral palsy in Uganda Functional development in children and youth with cerebral palsy in Uganda https://orcid.org/0000-0002-1189-3671 https://ror.org/03dmz0111 Medical and Health Sciences Medicin och hälsovetenskap Neurology Neurologi Pediatrics Pediatrik Physiotherapy Fysioterapi Public Health, Global Health and Social Medicine Folkhälsovetenskap, global hälsa och socialmedicin Child and Youth Studies Barn- och ungdomsvetenskap AIM To follow the functional development of a population-based cohort of children and youth (C&Y) with cerebral palsy (CP) in rural Uganda and compare their development with developmental trajectories from high-income countries (HIC). METHODS Eighty-one C&Y aged 2–17 years with CP were assessed 2015 and 2019 using Gross Motor Function Measure-66 items (GMFM-66), Pediatric Evaluation of Disability Inventory, Ugandan version (PEDI-UG), and functional classification systems. We calculated scaled scores (actual scores) and reference scores (amount of deviation from HIC developmental trajectories). Wilcoxon signed rank test was used for statistical analyses. RESULTS C&Y with CP in Uganda exhibited no differences in scaled scores between the first and second assessments for GMFM-66 and PEDI-UG mobility skills, while they exhibited increased PEDI-UG self-care skills (p<0.001). Reference scores were more negative at the second assessment than at the first assessment for GMFM-66 (p=0.002) and PEDI-UG mobility (p=0.036) but not for PEDI-UG self-care. The increased difference in reference scores over the 4 years were primarily driven by younger children (2–5 years) and C&Y with milder impairments. INTERPRETATION The increased difference in reference scores between assessments suggests that C&Y with CP in Uganda develop motor skills at a lower rate than peers in HIC. The dataset contains of the following files: - Functional_development_in Uganda_dataset_Andrews_et_al.csv - Variable_list_for_functional_development_in_Uganda_dataset_Andrews_et_al.pdf Information about the tool Gross Motor Function Measure-66 (GMFM-66): https://www.canchild.ca/en/resources/44-gross-motor-function-measure-gmfm Syfte Att följa den funktionella utvecklingen för en populationsbaserad kohort av barn och ungdomar med cerebral pares (CP) på landsbygden i Uganda, och jämföra deras utveckling med utvecklingskurvor från höginkomstländer. Metod 81 barn och ungdomar mellan 2-17 år undersöktes 2015 och 2019 med Gross Motor Function Measure-66 (GMFM-66) Pediatric Evaluation of Disability Inventory, Ugandan version (PEDI-UG), och funktionella klassifikationssystem. Datasetet består av följande filer: - Functional_development_in Uganda_dataset_Andrews_et_al.csv - Variable_list_for_functional_development_in_Uganda_dataset_Andrews_et_al.pdf Information om verktyget Gross Motor Function Measure-66 (GMFM-66): https://www.canchild.ca/en/resources/44-gross-motor-function-measure-gmfm info:eu-repo/semantics/restrictedAccess UG Sub-Saharan Africa Karolinska Institutet Karolinska Institutet 2021-08-19T09:15:02.178058Z eng