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<OAI-PMH xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance" xsi:schemaLocation="http://www.openarchives.org/OAI/2.0/ http://www.openarchives.org/OAI/2.0/OAI-PMH.xsd" xmlns="http://www.openarchives.org/OAI/2.0/">
  <responseDate>2026-10-13</responseDate>
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      <header>
        <identifier>oai:researchdata.se:2025-10/1</identifier>
        <datestamp>2026-03-03</datestamp>
        <setSpec>subject:ssif:30207</setSpec>
        <setSpec>subject:ssif:30221</setSpec>
        <setSpec>subject:ssif:30306</setSpec>
        <setSpec>subject:ssif:30307</setSpec>
        <setSpec>subject:ssif:302</setSpec>
        <setSpec>subject:ssif:303</setSpec>
        <setSpec>subject:ssif:3</setSpec>
        <setSpec>principal:slug:karolinska-institutet</setSpec>
      </header>
      <metadata>
        <oai_dc:dc xmlns:dc="http://purl.org/dc/elements/1.1/" xmlns:oai_dc="http://www.openarchives.org/OAI/2.0/oai_dc/" xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance" xsi:schemaLocation="http://www.openarchives.org/OAI/2.0/oai_dc/ http://www.openarchives.org/OAI/2.0/oai_dc.xsd">
          <dc:type>info:eu-repo/semantics/other</dc:type>
          <dc:type>http://purl.org/dc/dcmitype/Dataset</dc:type>
          <dc:identifier>https://doi.org/10.48723/enwx-zn78</dc:identifier>
          <dc:title xml:lang="en">Data for: Participating outcome of Akwenda Intervention Program for children with cerebral palsy in Uganda</dc:title>
          <dc:title xml:lang="sv">Data för: Participating outcome of  Akwenda Intervention Program for children with cerebral palsy in Uganda</dc:title>
          <dc:creator>https://orcid.org/0000-0003-2069-6618</dc:creator>
          <dc:creator>https://orcid.org/0000-0002-1189-3671</dc:creator>
          <dc:subject xml:lang="en">Medication and treatment</dc:subject>
          <dc:subject xml:lang="sv">Medicinering och behandlingar</dc:subject>
          <dc:subject xml:lang="en">Neurology</dc:subject>
          <dc:subject xml:lang="sv">Neurologi</dc:subject>
          <dc:subject xml:lang="en">Pediatrics</dc:subject>
          <dc:subject xml:lang="sv">Pediatrik</dc:subject>
          <dc:subject xml:lang="en">Occupational Therapy</dc:subject>
          <dc:subject xml:lang="sv">Arbetsterapi</dc:subject>
          <dc:subject xml:lang="en">Physiotherapy</dc:subject>
          <dc:subject xml:lang="sv">Fysioterapi</dc:subject>
          <dc:subject xml:lang="en">Physical fitness and exercise</dc:subject>
          <dc:subject xml:lang="sv">Fysisk form och träning</dc:subject>
          <dc:description xml:lang="en">This was a cluster-randomized, controlled, single-blinded study on a cohort of children and young people with CP in the Iganga-Mayuge Health and Demographic Surveillance Site. The CP cohort was divided in two arms: one receiving the Akwenda Intervention program, and the other serving as control waiting to receive the intervention the following year. Children with seizures in both groups were provided anti-seizure medications. Outcomes were assessed prior to and after the intervention period.

The Excel sheet includes the data collected before the intervention started (2021; baseline), and after the 11 months intervention ended (2022; follow-up).

Randomized, controlled, intervention trial.

Baseline data: Sociodemographic information and clinical data including anthropometry, Gross Motor Function Classification System (GMFCS) levels.

Primary outcome:  Picture My Participation (PMP); frequency of attendance and level of involvement in 20 activities of daily living.

The dataset contains of the following files:
- Data sharing PMP Akwenda.xlsx (48.7 kB)
- Documentation file data sharing PMP.docx
Details about the variables in the tables can be found in the documentation file.</dc:description>
          <dc:description xml:lang="sv">Detta var en kluster-randomiserad, kontrollerad, enkelblind studie på en kohort av barn och ungdomar med CP i Iganga-Mayuge Health and Demographic Surveillance Site. CP-kohorten var uppdelad i två armar: en som fick Akwenda-interventionsprogrammet och den andra fungerade som kontroll i väntan på att få interventionen följande år. Barn med epilepsi i båda grupperna fick anti-epileptiska läkemedel. Resultaten utvärderades före och efter interventionsperioden.

Data har samlats in innan interventionen startade (2021; baslinje) och efter att interventionen på 12 månader avslutades (2022).

Randomiserad, kontrollerad, interventionsstudie.

Basdata: Sociodemografisk information och kliniska data inklusive antropometri, nivåer för klassificeringssystem för grov motorik (GMFCS).

Primärt utfall: Picture My Participation (PMP); frekvens av närvaro och nivå av engagemang i 20 dagliga aktiviteter.

Datasetet består av följande filer:
- Data sharing PMP Akwenda.xlsx (48,7 kB)
- Documentation file data sharing PMP.docx
Mer information om variablerna i tabellerna finns i dokumentationsfilen.</dc:description>
          <dc:rights>info:eu-repo/semantics/restrictedAccess</dc:rights>
          <dc:coverage>UG</dc:coverage>
          <dc:rights>https://creativecommons.org/publicdomain/zero/1.0/</dc:rights>
          <dc:publisher xml:lang="en">Karolinska Institutet</dc:publisher>
          <dc:publisher xml:lang="sv">Karolinska Institutet</dc:publisher>
          <dc:date>2025-01-29T10:11:15.304788Z</dc:date>
          <dc:language>eng</dc:language>
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